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Our Story

Nevus Outreach is dedicated to bringing awareness, providing support, and finding cures for people affected by congenital melanocytic nevi and related disorders.

Nevus Outreach was founded in 1997 by three families of people with giant nevi and has since worked tirelessly to improve the lives of people with CMN. The Board of Directors is located throughout the USA and Canada, the Medical Advisory Committee comprises top melanocytic nevi physicians worldwide, and the Nevus Science Group comprises top melanocytic cell scientists and physicians worldwide.

Nevus Outreach is a 501(c)(3) nonprofit corporation headquartered in Jonesboro, AR.

girl twirling with birthmark on right arm

Awareness

Bringing awareness and education about large congenital melanocytic nevi (CMN) and neurocutaneous melanocytosis (melanosis) (NCM) including:

  • Producing literature on CMN and NCM, using content approved by our Professional Advisory Committee.

  • Distributing this educational material as widely as possible to doctors, patients and the public using direct mail, in-person handouts and the Internet.

 

Support

Provide support for people with CMN and NCM, including:

  • Offering support for psychological issues and the everyday problems specific to people with CMN and NCM.

  • Holding biennial conferences which bring people affected by CMN and NCM together with each other and with medical and psychosocial professionals.

  • Providing services such as a Facebook group, email based discussion groups, and online publications to help those affected by CMN and NCM to interact and share experiences and insight with each other.

  • Promoting social and psychological research and programs which benefit people affected by CMN and NCM.

  • Helping people with CMN and NCM who require medical treatment to obtain it.

  • Making up-to-date information about current research and medical discoveries available to members and other interested parties.

 

Treatment or Cure

Find a treatment or cure for CMN and NCM including:

  • Collecting data from people with CMN and NCM.

  • Funding medical research that pertains to CMN and NCM.

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