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Virtual Conference 2023

Virtual Conference 2023

Virtual Conference 2023
Welcome + Nevus Outreach: Where Are We Now?

Welcome + Nevus Outreach: Where Are We Now?

34:52
Play Video
Membership Matters!

Membership Matters!

14:14
Play Video
Psycho-Social Impacts of CMN

Psycho-Social Impacts of CMN

01:08:37
Play Video
NevusVoices RitaPink 2023
04:29
Live Q&A: Learning about navigating youth and living with CMN
01:16:48

Live Q&A: Learning about navigating youth and living with CMN

Hearing things directly from those who live it is always powerful. We recently invited members of our Awareness Committee for a Panel Q&A session. Matthew Rogers, Lilly Hennessey, and Amann Islam had many experience and insight to share. We knew this information would be useful today and far into the future for our Nevus family we are publishing their Live Q& A to make it accessible to all. We hope you enjoy the conversation and getting to know this panel of wonderful young adults! Learn more about Nevus Outreach at Nevus.org Time Stamps: 02:08 Background. Who are you? Where do you live? What do you do? What kind of Nevus do you have? What do you do with Nevus Outreach? Have you had removal surgeries? Would you recommend? 08:38 How has your nevus impacted you socially, psychologically, and professionally? 15:50 What is the best to give a child with a nevus? 22:52 Do you have any advice to give yourself as a child or teenager? 27:56 How do you deal with strangers staring or asking to touch it? 36:27 How did puberty affect your nevus and self-esteem? Do you have any hygiene tips you can share? 52:47 Would you have wanted your parents to ask you if you wanted surgery? 1:00:17 Member of audience expressed concern over scarring, and panelists elaborate on their experience with scarring (surgical and non-surgical). 01:06:14 Do you have any experience with nodules? 01:08:56 Do you think it is beneficial to be involved with Nevus Outreach? How has volunteering with Nevus Outreach been meaningful to you? 01:15:41 Closing remarks
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