Register before May 31st, 2026

We are thrilled to finally share with you the new logo for Nevus Outreach. We embrace the positive and exciting future that this new logo represents, and we are excited to envision the organization's growth and progress in the next 25 years and beyond. In the next few months, we will be launching a brand new website at nevus.org and other elements that align with this fresh look for the Nevus community.

Hearing things directly from those who live it is always powerful. We recently invited members of our Awareness Committee for a Panel Q&A session. Matthew Rogers, Lilly Hennessey, and Amann Islam had many experience and insight to share. We knew this information would be useful today and far into the future for our Nevus family we are publishing their Live Q& A to make it accessible to all. We hope you enjoy the conversation and getting to know this panel of wonderful young adults! Learn more about Nevus Outreach at Nevus.org Time Stamps: 02:08 Background. Who are you? Where do you live? What do you do? What kind of Nevus do you have? What do you do with Nevus Outreach? Have you had removal surgeries? Would you recommend? 08:38 How has your nevus impacted you socially, psychologically, and professionally? 15:50 What is the best to give a child with a nevus? 22:52 Do you have any advice to give yourself as a child or teenager? 27:56 How do you deal with strangers staring or asking to touch it? 36:27 How did puberty affect your nevus and self-esteem? Do you have any hygiene tips you can share? 52:47 Would you have wanted your parents to ask you if you wanted surgery? 1:00:17 Member of audience expressed concern over scarring, and panelists elaborate on their experience with scarring (surgical and non-surgical). 01:06:14 Do you have any experience with nodules? 01:08:56 Do you think it is beneficial to be involved with Nevus Outreach? How has volunteering with Nevus Outreach been meaningful to you? 01:15:41 Closing remarks

Parenting has it's own set of challenges. When you combine that with having a child with a Rare Condition it makes the world change just a bit more. Check out Oliver and Trish's story about being parents of sweet August who was born with a Nevus. To learn more about Nevus Outreach visit nevus.org #nevus #rarecondition #nevusoutreach #nevusowner

Meet the next person in our Nevus Voices series - Charlie Price, a college student who was born with a cape nevus, as he shares his story as part of our Nevus Voices series. Charlie talks about what it's like to live with a large birthmark, the challenges he's faced, and how he's overcome them. He also shares his hopes for the future and his message to others who are living with birthmarks. Charlie says that he hopes that his story will help others who are living with a nevus. He wants them to know that they're not alone, and that there are people who care about them. He also wants them to know that they can overcome any challenges they face. Charlie's story is an inspiration to us all. He is a brave and courageous young man who has shown us that it is possible to live a full and happy life with as a nevus owner. We are grateful to Charlie for sharing his story with us, and we hope that it will help others.